You are really a very Strong Person enduring all this pain!i trully admire you! i have been following your Journey all this Time and i must say although you suffer soooo much, your AMAZING humour ( i love your videos !!!!) and your family helped you so much, you have Great support !!!! but i really wanted to ask you (if its ok of course) about your history and usage, that led you to TSW! i have also unfortunetely used steroids, fucibet on my Face for 1 1/5 years but To be honest never went to TSW ! ( stopped them in August 2015 ). International Topical Steroid Awareness Network
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ORG for more stories and information on Topical Steroid Withdrawal. But, they are also being used as dangerous bandaids - masking the problem while creating an even bigger one underneath. One thing I will say is that steroids have their time and place. And we will not stop until this is seen as a true medical condition. But that’s the only way to get the public’s attention. It’s extremely difficult showcasing our personal pain. Many TSW sufferers are starting to share their stories and their gruesome pictures. In the medical field, you are hard pressed to find physicians and dermatologists who are willing to help without the use of MORE steroids. It is anything but short lived, and the pain it causes, physically and emotionally, is overwhelming. What I find hardest about Topical Steroid Withdrawal is how lonely it can be. Since it is such a novel condition, many treat it like a cold: something short lived and mildly irritating. Standing in a line without being stared at. Falling asleep even when you are completely drained. The many mundane things that people take for granted are far out of our reach at times– Our lives are abruptly halted and we await the day our lives can be lived once more. All who are found guilty are merely victims. However, aside from the science, Topical Steroid Withdrawal is a prison sentence. Some include edema, enlarged lymph nodes, and hair loss. There is a page that answers many questions regarding this condition, including what the main symptoms can be for TSW. ITSAN.ORG (International Topical Steroid Awareness Network)is a tremendous resource for TSW sufferers. The length usually correlates to the potency of the steroid used and/or length of time it was used. Others have endured the pain for 7 years. Some are lucky and it passes within 6 months. In addition, there is no cure, and the length of TSW is indefinite.
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It sounds less painful than it actually is for TSW sufferers.
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After the withdrawal period is over the atopic dermatitis can cease or is less severe than it was before.”
ALL ALONE TOGETHER TSW SKIN
This is also called ‘red skin syndrome’ or ‘topical steroid withdrawal'(TSW). When topical steroid medication is stopped, the skin experiences redness, burning, itching, hot skin, swelling, and/or oozing for a length of time. TSA is characterised by uncontrollable, spreading dermatitis and worsening skin inflammation which requires a stronger topical steroid to get the same result as the first prescription. Question: What is Topical Addiction? What is Topical Steroid Withdrawal?įrom Wikipedia (and surprisingly accurate) - “Topical steroid addiction (TSA) has been reported in long-term users of topical steroids (users who applied topical steroids to their skin over a period of weeks, months, or years). It is an unknown condition that needs to be recognized in the medical world. But, when a friend or family member tells you, “ I am going through Topical Steroid Withdrawal,” there is no protocol.
ALL ALONE TOGETHER TSW HOW TO
There is always a protocol for how to act when a certain medical trouble occurs. You offer up a sad face, tell them to bundle up and eat soup, and in a week, they will be all better.
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They will experience congestion, soar throat, coughing, sluggishness, perhaps even a fever. When someone tells you, “ I have a cold,” you know exactly what that entails.